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Channel: A Mother's Story Archives - Beyond Batten Disease Foundation
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The Blind Vest

Have you ever wondered what it would be like if the whole world knew your pain? Would you feel exposed or liberated? Would you be embarrassed or relieved? Would others treat you differently? I frankly...

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Who Will They Be?

I remember a little boy when I was young who was handicapped.  I don’ t remember his name, but I’ll never forget the impression he made.  Walking for him required effort, his expressions were...

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Muddy Bogs and Steep Hills

Some say control is an illusion and if you want to make God laugh, tell Him your plan. Have you ever tried to prepare for the unknown or anticipated a new situation or challenge and wondered if you had...

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Reciprocity

Mother Theresa once said, “ We are all pencils in the hand of a writing God who is sending a love letter to the world”. In the wake of Run to the Sun, our fourth annual overnight relay through the...

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5th Grade Hope

Back to school always marks the end of summer with anticipation and excitement for a new season for children.  Even parents welcome the new routine. New beginnings abound for children of all ages and...

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Possible

Have you ever wondered if you are relevant, significant, or if anything you do really matters? Sometimes I get moving so fast, occupied with my daily activities, and whirling in a million directions,...

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A Mother’s Story: Beyond Fear and Doubt – by Charlotte Benson

Robert Schuller once said, “I’d rather attempt to do something great and fail, than attempt to do nothing and succeed.” Life is full of successes and failures and eventually we are all faced with...

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Tree Planting

On Saturday morning, the weather was perfect just long enough for the Bensons to share some beautiful words of gratitude and to plant the “Triangle Oak” in honor of all of you. Thanks to those of you...

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West Austin News: The Boy with the Golden Heart

The Boy with the Golden Heart Juvenile Batten disease is a rare and terminal condition that causes blindness and seizures and is mentally and physically incapacitating with an average life expectancy...

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A Mother’s Story

Photo by Catherine Sanderson | catherinesanderson.comOn March 28, 2008, my husband Craig and I received the devastating news that our daughter, Christiane had been diagnosed with a very rare...

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